Future Events

A Multimodal Approach to Exploring the Adultification of Black Girls and Its Impact on Physical and Mental Health Outcomes
Daniela Brissett, MD
Adolescent Medicine Fellow Physician
Children's Hospital of Philadelphia

Registration

Penn Bioethics Seminar Series

July 12, 2024
Noon – 2:30 pm
Online
        

Commemorating the 50th Anniversary of the National Research Act

Abstract: July 12, 2024 marks the 50th anniversary of the enactment of the National Research Act. The National Research Act was a response to public outcry that the federal government let hundreds of Black men in rural Alabama go untreated for syphilis for 40 years to study the impact of the disease on the human body. The Act included creation of federal rules to protect human participants in research. It also led to the establishment of the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research to identify ethical standards to guide human research.  
   This program will reflect on what happened following the passage of the National Research Act, showcase the diverse role research participants play in contemporary research, and consider what future scientific advances may mean for research participants and public trust in research.

Noon – 12:15 pm
Opening Statement

12:15 – 12:50 pm
Reflections on the Work of the National Commission
        Patricia A. King, JD
        Professor Emerita, Georgetown Law

The Evolution of the Regulations for Human Research Protections and the Establishment of OHRP
        Ivor A. Pritchard, PhD
        Senior Advisor to the Director of the HHS Office for Human Research Protections

A Brief History of Public Responsibility in Medicine and Research (PRIM&R) – A Response from the Research Community
        Ivy Tillman, EdD
        Executive Director of PRIM&R

12:50 – 1:45 pm
Why I Participated in Research - A Participant’s Voice
        Rey Calabrese
        Former Research Participant and Current Research and Community Coordinator at Fenway Health

Participants as Investigators: Participatory Action Research and Community-Led Studies
        Basaime Spate
        Community Research Coordinator, Center for Justice Innovation

Respecting Cultural Values: Doing Research with Indigenous Populations
        Karina L. Walters, PhD, MSW
        Director, NIH’s Tribal Health Research Office (THRO)

Listening to the People: Community Ethics Review Boards
        Ella Greene-Moton
        Member of a Community Ethics Board in Flint, MI, and President of the American Public Health Association

Engaging the Community in Research: The Insight of an Investigator
        Sergio Aguilar-Gaxiola, MD, PhD
        Professor of Clinical Internal Medicine; Director, Center for Reducing Health Disparities (CRHD); Director, Community Engagement Program of the Clinical Translational Science Center (CTSC), University of California, Davis, School of Medicine

1:45 – 2:30 pm
Contemplating the Future
Panelists:
        Jodi Halpern, MD, PhD
        Chancellor’s Chair and Professor of Bioethics, UC Berkeley

        Misha Angrist, PhD, MFA
        Associate Professor of the Practice, Social Science Research Institute, Senior Fellow Duke Initiative for Science & Society, Visiting Associate Professor of the Practice, Sanford School of Public Policy

        Lee McIntyre, PhD
        Research Fellow, Center for Philosophy and History of Science, Boston University

        Aaron F. Mertz, PhD
        Director, Science and Society, Aspen Institute

        Moderated by: Laura Ruse Brosch, RN, PhD, COL, AN, USA (ret)
        Assistant Vice President for Research Initiatives and Compliance, Office of the Vice President for Research, Uniformed Services University of the Health Sciences

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Sponsored by the US Department of Health and Human Services Office for Human Research Protections