Widening the Lens: Using Arts in ELSI Research

April 9, 2021 -
12:00pm to 1:00pm


Sydney Cheek-O'Donnell, PhD (University of Utah)
Erin Rothwell, PhD (University of Utah)
Erin Talati Paquette, MD, JD (Northwestern University)
Moderator: Maya Sabatello, LLB, PhD (Columbia University)

Abstract: Using the arts in Ethical, Legal, and Social Implications (ELSI) research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated comics and whiteboard video to educate participants about issues such as consent and return of results and to convey concepts of biorepository research. This session will begin with a brief overview of how the arts can be employed to bolster public access and understanding of research studies and findings. This will be followed by presentations of two projects that utilized arts in ELSI research. The first project will focus on storytelling in genomic spaces and the use of community engagement and public deliberation to develop a responsive consent process for pediatric biobanks. The second project will focus on how a theoretical model “entertainment-education” (E-E) can explain why the use of artistic methods may be more effective for improving knowledge of patients and research participants. Join us for this panel discussion of ELSI collaboration with the arts.

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Sponsored by ELSI Hub, NHGRI and Columbia University

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