Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease

June 11, 2021 -
12:00pm to 1:00pm

  Liza-Marie Johnson, MD, MPH, MSB, St. Jude’s Children’s Research Hospital
  Melissa Creary, PhD, MPH, Assistant Professor of Health Management and Policy, University of Michigan

  Pilar Ossorio, JD, PhD, Professor of Law and Bioethics, University of Wisconsin – Madison

Abstract: This panel will discuss the current state of therapy for sickle cell disease and some ethical issues that arise in the emerging use of gene transfer or gene editing for treating the disease. Dr. Johnson will focus on ethical issues identified by patients, and Dr. Creary will discuss some of the social and historical ethical challenges that relate to genetic interventions for sickle cell.

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